If you want access to the private forum...

Tigerlilly · 11-17-2004, 02:44 PM

... you must have at least 400 posts in public forums. PM forum moderators Boo and Tigerlilly or forum

Pudin for access.

If you don't meet the criteria for private forum entrance, you can still ask questions and seek support here in the public area. Don't be bashful; just speak up and let us know why you're here! It's a great group in the CC forum, and there's always room for more.

Alluvus · 02-03-2005, 09:56 AM

chronic asthmatic here, been one year and 3 months to try and figure out a treatment plan, but have had no success..
Please allow me and my combivent in.

03-03-2005, 11:02 AM

Tigerlilly, what if we have been here 2 months but can't afford the membership? Cause I can't PM you

Tigerlilly · 03-08-2005, 06:15 AM

You'd post here.

Check back periodically over the next couple of days to see if you've been added.

04-16-2005, 02:20 PM

Guess I'll just do my time and wait then.

I have a chronic condition which is currently incurable with today's technology. It's called Thorasic Outlet Syndrome. In nature, it is very like Carpal Tunnel Syndrome, except that it affects the Thorasic Nerve instead of the Carpal Nerve. For anyone experienced with Carpal Tunnel, the easiest explanation is that I have it all the way up my arm, into my spine.

It's cause is the reason it's inoperable. I have extreme "tendon laxity," which is a fancy way to say I am double jointed and more flexible than Gumby. In short, my tendons give so much, my joints don't stay in place. This has caused "multi directional instability" in my right shoulder, meaning it flops around at willl, dislocating constantly.

Which irritates the nerve (TOS), cartilige (arthritis) and bursa (bursitis.) The standard cure would be to shorten the tendons, but because of the laxity, they would only lengthen again. Repeated surgery to shorten them again would cause scar tissue build up, defeating the purpose.

See you on the other side in a couple of months, 350 posts and $15!! (I hope!)

04-22-2005, 08:55 PM

I'm brand new here so it will be a while before I'm eligible for the private forum but I thought I'd go ahead and introduce myself anyway.

I was diagnosed with lupus (SLE) and secondary fibromyalgia syndrome almost 2 years ago. I also have sleep apnea and chronic migraines. I was a reasonably healthy person until I was 28 years old and then I suddenly embarked on this medical odyssey of frequent trips to the ER, hospitalizations, trips to specialists, tons of medications with all kinds of side effects and massive disruptions of my career and family life. My personal experience with chronic illness has caused me to rethink my future career plans and I am currently returning to grad school to pursue a degree in clinical psychology with the hope of working with people who are dealing with the psychological aspects of chronic illness (I've yet to completely flesh out how I'm going to manage this when I can't even get my own ass out of bed half the time but I'll cross that bridge when I come to it!). Anyway, I take part in a couple of pretty good lupus forums but I figure the more support the better so I'll be happy to join you guys when I've put in my time.

04-23-2005, 09:59 PM

Guess we'll wait it out together Remedios!

Pleasure to meet you. What an interesting take you have on life! I think it's really neat that when faced with changing your life around you decided to take such a positive direction with it. I know I could have REALLY used just that kind of support/advice/cousel when I was diagnosed. Kudos to you!

05-10-2005, 05:36 PM

I too am a newbie who will have to wait it out. I have Crohns disease and two kids and a husband who keep asking if I can eat that, did the dr say it was ok. Happy to have found you all though

boo · 05-13-2005, 05:31 PM

Welcome!

gossamer · 05-13-2005, 10:17 PM

Can I get access? I don't post a lot but I have been at sybermoms for a while. I have fibromyalgia and disc problem in my spine. I am missing one disc completely and 2 others are in really bad shape and I will require more surgery in the future. I had a spinal fusion done in 1996 that has left me with nerve damage on my whole right side which leaves me in a lot of pain and I have chronic migraines because of it. I also have a bit of arthritis but that seems to be the least of my concerns right now.

Lyerin · 05-20-2005, 08:31 AM

I pm'd Pudin and she said that she was adding me a few days ago, but I'm not in. Can I please have access?

I have had hives every day for almost two years now. It is "chronic" in the sense that I have to live with it everyday and it gets frustrating and really sucky.

Tigerlilly · 05-20-2005, 02:19 PM

Lyerin,

s are the ones who go into the system and physically add users to the forum. We mods just send them pms and bug the shit out of them until they do it.

Give her a few more days before you think she's forgotten. Remember, the

s are mothers, wives, partners, employees, business owners, etc. and they all have real life stuff to deal with in addition to Sybermoms responsibilities. Sometimes it can be a few days before one of them has time to sit down and catch up on things like forum additions.

If you're not in by Monday or Tuesday, PM me and I'll poke Pudin with a stick. There's no sense in more than one of us risking our lives, and I'll take the hit since I'm the mod.

Lyerin · 05-23-2005, 08:26 AM

Tigerlilly! I know what you mean about the

s having lives!

I wouldn't have posted anything except that in her PM, Pudin said she was adding me "right now" and I'm still not in as of today. I'm sure it was either my misunderstanding of how it works, or perhaps some glitch prevented me from being added.

I'll keep you posted as to whether or not I'm in.

Hives were

this weekend and are not much better today. Especially the ones on my shoulder blades - of course right where I can't reach.

boo · 05-23-2005, 08:54 AM

Sorry about the hives.

I'm happy to take the hit as mod too.

My porch is too clean anyway.

Irish Temper · 08-13-2005, 04:01 PM

Finally I have made it to 400 posts, off to PM a mod to get in... I have fibromyalgia, asthma etc

boo · 08-13-2005, 07:03 PM

Did you pm Tigerlilly, or do you still need help?

Ms.Mayhem · 08-30-2005, 09:00 PM

Could I be added please? I am going through so much and I could really use some support. Thank you.

boo · 09-01-2005, 08:23 PM

I'm working on it for you, Mayhem.

Meanchickie · 10-03-2005, 01:39 PM

I have interstitial cystitis, which is a bladder condition.

I don't hae enough posts yet but will be cool with posting in here for a bit.

NewBonusMom · 01-17-2008, 05:11 PM

Quote:

Originally Posted by Meanchickie

I have interstitial cystitis, which is a bladder condition.

I don't hae enough posts yet but will be cool with posting in here for a bit.

So do I; diagnosed in 2001. Right now I'm not on any meds for it. I just came back from spending six years in the UK and their treatments there were less than effective. Are you on meds?

11-17-2004, 02:44 PM	#1
Tigerlilly this space for rent Hard-Core Sybermom Bowling Champion! Turbo Mahjong Solitaire Champion! Join Date: Jul 2002 Location: Chatsworth Estate, Manchester Posts: 4,442 Credits: 10,961 Points: 0.00 Banked Points: 2700.00 Donate	If you want access to the private forum... ... you must have at least 400 posts in public forums. PM forum moderators Boo and Tigerlilly or forum Pudin for access. If you don't meet the criteria for private forum entrance, you can still ask questions and seek support here in the public area. Don't be bashful; just speak up and let us know why you're here! It's a great group in the CC forum, and there's always room for more. __________________ Last edited by Tigerlilly; 05-18-2005 at 10:11 AM.
	< Submit to Quotes

02-03-2005, 09:56 AM	#2
Alluvus AUCTION LOSER Join Date: Jul 2002 Location: Now, if I told you, where would the element of surprise be? Posts: 533 Credits: 0 Points: 0.00 Banked Points: 0.00 Donate	admittance to this forum so I can whine, please.. chronic asthmatic here, been one year and 3 months to try and figure out a treatment plan, but have had no success.. Please allow me and my combivent in.
	< Submit to Quotes

03-03-2005, 11:02 AM	#3
Dark Lady Jada Ambulance Chaser Tournaments Won: 9 Posts: n/a Credits: 0 [Check] Points: Banked Points: Donate	Tigerlilly, what if we have been here 2 months but can't afford the membership? Cause I can't PM you
	< Submit to Quotes

03-08-2005, 06:15 AM	#4
Tigerlilly this space for rent Hard-Core Sybermom Bowling Champion! Turbo Mahjong Solitaire Champion! Join Date: Jul 2002 Location: Chatsworth Estate, Manchester Posts: 4,442 Credits: 10,961 Points: 0.00 Banked Points: 2700.00 Donate	You'd post here. Check back periodically over the next couple of days to see if you've been added. __________________
	< Submit to Quotes

04-16-2005, 02:20 PM	#5
Webwriter Ambulance Chaser Tournaments Won: 9 Posts: n/a Credits: 0 [Check] Points: Banked Points: Donate	Guess I'll just do my time and wait then. I have a chronic condition which is currently incurable with today's technology. It's called Thorasic Outlet Syndrome. In nature, it is very like Carpal Tunnel Syndrome, except that it affects the Thorasic Nerve instead of the Carpal Nerve. For anyone experienced with Carpal Tunnel, the easiest explanation is that I have it all the way up my arm, into my spine. It's cause is the reason it's inoperable. I have extreme "tendon laxity," which is a fancy way to say I am double jointed and more flexible than Gumby. In short, my tendons give so much, my joints don't stay in place. This has caused "multi directional instability" in my right shoulder, meaning it flops around at willl, dislocating constantly. Which irritates the nerve (TOS), cartilige (arthritis) and bursa (bursitis.) The standard cure would be to shorten the tendons, but because of the laxity, they would only lengthen again. Repeated surgery to shorten them again would cause scar tissue build up, defeating the purpose. See you on the other side in a couple of months, 350 posts and $15!! (I hope!)
	< Submit to Quotes

04-22-2005, 08:55 PM	#6
remedios Ambulance Chaser Tournaments Won: 9 Posts: n/a Credits: 0 [Check] Points: Banked Points: Donate	I'm brand new here so it will be a while before I'm eligible for the private forum but I thought I'd go ahead and introduce myself anyway. I was diagnosed with lupus (SLE) and secondary fibromyalgia syndrome almost 2 years ago. I also have sleep apnea and chronic migraines. I was a reasonably healthy person until I was 28 years old and then I suddenly embarked on this medical odyssey of frequent trips to the ER, hospitalizations, trips to specialists, tons of medications with all kinds of side effects and massive disruptions of my career and family life. My personal experience with chronic illness has caused me to rethink my future career plans and I am currently returning to grad school to pursue a degree in clinical psychology with the hope of working with people who are dealing with the psychological aspects of chronic illness (I've yet to completely flesh out how I'm going to manage this when I can't even get my own ass out of bed half the time but I'll cross that bridge when I come to it!). Anyway, I take part in a couple of pretty good lupus forums but I figure the more support the better so I'll be happy to join you guys when I've put in my time.
	< Submit to Quotes

04-23-2005, 09:59 PM	#7
Webwriter Ambulance Chaser Tournaments Won: 9 Posts: n/a Credits: 0 [Check] Points: Banked Points: Donate	Guess we'll wait it out together Remedios! Pleasure to meet you. What an interesting take you have on life! I think it's really neat that when faced with changing your life around you decided to take such a positive direction with it. I know I could have REALLY used just that kind of support/advice/cousel when I was diagnosed. Kudos to you!
	< Submit to Quotes

05-10-2005, 05:36 PM	#8
mommapollock Ambulance Chaser Tournaments Won: 9 Posts: n/a Credits: 0 [Check] Points: Banked Points: Donate	I too am a newbie who will have to wait it out. I have Crohns disease and two kids and a husband who keep asking if I can eat that, did the dr say it was ok. Happy to have found you all though
	< Submit to Quotes

05-13-2005, 05:31 PM	#9
boo Wayward Wombat Hard-Core Sybermom Join Date: Aug 2002 Posts: 9,664 Credits: 6,736 Points: 20100.00 Banked Points: 217.20 Donate	Welcome! __________________
	< Submit to Quotes

05-13-2005, 10:17 PM	#10
gossamer Registered User Hard-Core Sybermom 3 Reel Flash Slots Champion! 5 Reel Safe Cracker Slots Champion! 5 Reel Summer Slots Champion! Angel Bobble Champion! Bingo Champion! Bookworm Champion! Collapse XXL Champion! Combo Card Champion! Concentrate Plus Champion! Fireman Champion! Frogger Champion! Sky Blocks Champion! Slime Ball Champion! Space Invaders Champion! Spellbound Champion! The Weakest Link Champion! Video Poker Champion! Wacky Word Wiz Champion! Join Date: Aug 2003 Posts: 37 Credits: 7,440 Points: 45.00 Banked Points: 0.00 Donate	Can I get access? I don't post a lot but I have been at sybermoms for a while. I have fibromyalgia and disc problem in my spine. I am missing one disc completely and 2 others are in really bad shape and I will require more surgery in the future. I had a spinal fusion done in 1996 that has left me with nerve damage on my whole right side which leaves me in a lot of pain and I have chronic migraines because of it. I also have a bit of arthritis but that seems to be the least of my concerns right now.
	< Submit to Quotes

05-20-2005, 08:31 AM	#11
Lyerin Wayward Wombat Hard-Core Sybermom Join Date: Jan 2004 Location: at my house Posts: 14,664 Credits: 221,816 Points: 22330.00 Banked Points: 36.00 Donate	I pm'd Pudin and she said that she was adding me a few days ago, but I'm not in. Can I please have access? I have had hives every day for almost two years now. It is "chronic" in the sense that I have to live with it everyday and it gets frustrating and really sucky. __________________ http://www.sybermoms.com/forums/showthread.php?t=602110 Want a Sustainablebabyish Diaper? I have one! Barely used! You know you want it!
	< Submit to Quotes

05-20-2005, 02:19 PM	#12
Tigerlilly this space for rent Hard-Core Sybermom Bowling Champion! Turbo Mahjong Solitaire Champion! Join Date: Jul 2002 Location: Chatsworth Estate, Manchester Posts: 4,442 Credits: 10,961 Points: 0.00 Banked Points: 2700.00 Donate	Lyerin, s are the ones who go into the system and physically add users to the forum. We mods just send them pms and bug the shit out of them until they do it. Give her a few more days before you think she's forgotten. Remember, the s are mothers, wives, partners, employees, business owners, etc. and they all have real life stuff to deal with in addition to Sybermoms responsibilities. Sometimes it can be a few days before one of them has time to sit down and catch up on things like forum additions. If you're not in by Monday or Tuesday, PM me and I'll poke Pudin with a stick. There's no sense in more than one of us risking our lives, and I'll take the hit since I'm the mod. __________________
	< Submit to Quotes

05-23-2005, 08:26 AM	#13
Lyerin Wayward Wombat Hard-Core Sybermom Join Date: Jan 2004 Location: at my house Posts: 14,664 Credits: 221,816 Points: 22330.00 Banked Points: 36.00 Donate	Tigerlilly! I know what you mean about the s having lives! I wouldn't have posted anything except that in her PM, Pudin said she was adding me "right now" and I'm still not in as of today. I'm sure it was either my misunderstanding of how it works, or perhaps some glitch prevented me from being added. I'll keep you posted as to whether or not I'm in. Hives were this weekend and are not much better today. Especially the ones on my shoulder blades - of course right where I can't reach. __________________ http://www.sybermoms.com/forums/showthread.php?t=602110 Want a Sustainablebabyish Diaper? I have one! Barely used! You know you want it!
	< Submit to Quotes

05-23-2005, 08:54 AM	#14
boo Wayward Wombat Hard-Core Sybermom Join Date: Aug 2002 Posts: 9,664 Credits: 6,736 Points: 20100.00 Banked Points: 217.20 Donate	Sorry about the hives. I'm happy to take the hit as mod too. My porch is too clean anyway. __________________
	< Submit to Quotes

08-13-2005, 04:01 PM	#15
Irish Temper Registered User Unsupportive Freeloader Join Date: Mar 2005 Location: Walking for our Boobies in AZ Posts: 125 Points: 20.00 Banked Points: 0.00 Donate	Finally I have made it to 400 posts, off to PM a mod to get in... I have fibromyalgia, asthma etc
	< Submit to Quotes

08-13-2005, 07:03 PM	#16
boo Wayward Wombat Hard-Core Sybermom Join Date: Aug 2002 Posts: 9,664 Credits: 6,736 Points: 20100.00 Banked Points: 217.20 Donate	Did you pm Tigerlilly, or do you still need help? __________________
	< Submit to Quotes

08-30-2005, 09:00 PM	#17
Ms.Mayhem Registered User Unsupportive Freeloader Join Date: Feb 2003 Location: WA State Posts: 837 Points: 5.00 Banked Points: 0.00 Donate	Could I be added please? I am going through so much and I could really use some support. Thank you.
	< Submit to Quotes

09-01-2005, 08:23 PM	#18
boo Wayward Wombat Hard-Core Sybermom Join Date: Aug 2002 Posts: 9,664 Credits: 6,736 Points: 20100.00 Banked Points: 217.20 Donate	I'm working on it for you, Mayhem. __________________
	< Submit to Quotes

10-03-2005, 01:39 PM	#19
Meanchickie Registered User Unsupportive Freeloader Join Date: Dec 2002 Posts: 125 Points: 0.00 Banked Points: 0.00 Donate	I have interstitial cystitis, which is a bladder condition. I don't hae enough posts yet but will be cool with posting in here for a bit.
	< Submit to Quotes

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