MRI results - Sybermoms Parenting Forum
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post #1 of 6 (permalink) Old 10-08-2006, 12:40 PM Thread Starter
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MRI results

For the second month in a row, there has been no change in the fungal infection in his brain. He can't stay on these meds forever, as they are build up in his system, and can cause organ failure. I will be talking with his primary Oncologist tomorrow.

Also, Josh should be starting the next phase of his chemo next week. This phase is another steroid phase. We will be watching his glucose closely, since last time he was on these steroids, his glucose jumped up to the 500s. He became steroid diabetic, and had to take insulin shots before each meal. I sure hope we can avoid that again!

Josh is feeling well for the most part, and so happy to be back in school! (for 1 class, but at least he's back.)
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post #2 of 6 (permalink) Old 10-09-2006, 04:57 AM
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Great news!! Keep up the good work Josh!
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post #3 of 6 (permalink) Old 10-09-2006, 05:00 AM
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It sounds like Josh is doing great, but I took the "no change in the fungal infection" as not such great news?

Hope your talk with the oncologist sheds some light on the infectionClick here to enlarge
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post #4 of 6 (permalink) Old 10-09-2006, 08:30 AM
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Still keeping you all in our prayers. Thanks for the update.
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post #5 of 6 (permalink) Old 10-09-2006, 04:18 PM Thread Starter
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No, I was no encouraged at the "no change" part. After talking with the nurse pratitioner in charge of his case, though, it may not be as bad as I thought. There is a slight possibility that there has been no change in the scan, because what we are seeing is scar tissue, not active infection. I'm not sure how they will determine that, though, other than to stop all meds, and see what happens. (Which, frankly, scares me to death) Hopefully we will no more after the ID docs complete a thorough inspection of his scans. (Why they didn't even start until after I called wanting answers, is way unacceptable.)

Josh will have another lumbar puncture and chemo on Thursday. That's the beginning of his delayed intensification phase. When we get through this phase, we are into long term maintenance!
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post #6 of 6 (permalink) Old 10-11-2006, 06:23 AM
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GOOOOOOOOO JOSH!!!!!!!!!! Our family is so totally rooting for you all!

I took the mri results to mean nothing new=good. Click here to enlarge
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