gah - Sybermoms Parenting Forum
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Posted 09-20-2009 at 10:10 AM by maelstrom

Pedes appt was a bust. Weight 8.6k so up a fraction from the 8.5 but I'm pretty sure they weighed her naked last time and in her diaper this time. No change in head circumfrence and she wouldn't let them do the board for height. The doc was in awe of her feistiness, no way were we getting an accurate height.

Metabolic urine tests were negative which is great news but means we're off the emergent list for the metabolic doctor and back on the urgent list so that may be delayed.

Pede is at a loss, agreed to no more tests til after her endoscope. So we're doctor free for a month unless we notice a weight loss.

So our plan is to keep on pushing food, keep on supplementing with the duocal etc. The doc and dietician and I had a long talk about any calories being good at this point so to let go of the healthy stuff and push the calorie dense. I'm having such a stumbling block with this. The pede agreed with the gi doc, after the scope its time for a feeding tube if we haven't figured this out, its too crucial a time for brain development to let it go longer.
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