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maelstrom maelstrom is offline

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  • Last Activity: 03-06-2015 06:24 PM
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Posted 03-26-2010 at 11:13 AM by maelstrom Comments 4
Posted in Uncategorized
My dd is 2 today :hb missK. Poor thing celebrated by meeting her dietician and having a blood draw. Dietician was good, no weight gain but no loss either. We're to keep on with the high calorie diet and managed to hold off the feeding tube for another couple months in hopes we get more gain.

Blood draw was her microarray dna test. It was lousy as usual but the staff were great, she had two techs who were fast and a clown trying to entertain her. She came home with a new puppy with...

Posted 03-05-2010 at 10:34 AM by maelstrom Comments 2
Posted in Uncategorized

Yesterday was Ks metabolic appt. The great metabolic appt we kept hoping would give us answers. Sigh. No real answers yet other than the metabolic docs think likely no, no metabolic issues. They suggested genetics and a good allergist. The geneticist one b/c she has some features that may them do the huh and stare at her for a while. Apparently she has dysmorphic features (flat nose? I'll...

Posted 02-18-2010 at 10:44 AM by maelstrom Comments 1
Posted in Uncategorized
We had a gi appt this morning and when the nurse came in to get us, K started yelling halp, halp me and asking to go home. The waiting room was full, luckily it was teens and babies so everyone laughed. The poor nurse is going to get a complex though. We always have the same one and last time it was nurse bad over and over. Luckily it was just a weigh in and height for the nurse so after the hysterics ended, she got to play with K for a few minutes and see the lovely side of her.


Posted 01-08-2010 at 08:24 AM by maelstrom Comments 2
Posted in Uncategorized
K outgrew one of her onsies! Granted it was a 6 month size but it no longer fits! We go for weight check next friday so I'm curious to see if its a length issue or if she's put on weight too. I went back to feeding her at night in an attempt to stave off the feeding tube but I don't how long I can keep that up before falling to exhaustion. So far so good.

Posted 12-17-2009 at 03:01 PM by maelstrom Comments 3
Posted in Uncategorized
yes you. No, its not a great thing to be hypermetabolic and its not something you'd love to have :stfu And no I don't think doc's are overreacting by sending her for all these consults. I have to vent about it here because believe it or not these people actually care about K and I can't yell at them.
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